A unit for rare diseases was founded by the hospital district on May 27, 2015.  The unit focuses on improving and coordinating the management of rare diseases.

Our goal is to guarantee every patient who has a rare disease the best possible treatment according to unified criteria.

We work in close national and international collaboration with patient organizations, units within health care and public administration, research projects and companies.

The responsible person for the unit is Dr. Johanna Lempainen, docent and specialist physician, and administratively we come under the Department of Paediatrics and Adolescent Medicine. Still, we coordinate the management of paediatric as well as of adult patients.

Our unit does not have an open care unit, since its role is to direct patients on the basis of referrals from the open care into the appropriate treatment path, where multiprofessional teams manage the treatment of these patients.  

The Unit for rare diseases acts as a coordinating unit and is not directly involved in the treatment of patients.

Treatment and examinations

Rare diseases 

The unit for rare diseases acts as a coordinating unit and is not directly involved in the treatment of patients. A professional team assesses, however, patients with respect to rare diseases and physicians may refer patients for such assessments.

We use these pages to inform about current activities.

Tyks opens a new unit to examine patients with rare diseases
Press release from the Hospital District, September 3, 2015 

Patients with rare disease have own unit at Tyks 
Turun Sanomat August 22, 2015  

Tyks centralizes treatment of rare diseases 
Turun Sanomat November 20, 2014 

Notice in the pages of the Harso association
Heikki Lukkarinen

You may now refer patients whom you suspect may have a rare disease for consideration by the professional team at the unit of rare diseases.  Currently we assess the need for further examinations on the basis information in the patient's records. It is important the written referral contains all important information about the patient.

Sources:

Tyks, Unit for rare diseases
Main hospital, UB4
POB 52
FI-20521 Turku
Finland